8 July 2014

From good to not so good

Things haven't gone as we had hoped. As I said Caitlin has haemorrhagic cystitis which has been caused by the BK virus. There's not a lot you can do to get rid of it, it's just a matter of making her comfortable and riding it out. On wednesday 2nd the decision was made to give her a catheter, this was so she could get some rest and to help with the pain. It wasn't the most pleasant experience but it was necessary. This one kept blocking so on saturday it was removed. They gave her a few hours rest before a new one had to go back in. This one kept blocking also, then her pain became unbearable. So at 8.45 pm on saturday night Caitlin went into theatre to have another one put in, this one has its own flush etc. while in theatre they removed a lot of clots that were causing the blockages. Before she went into theatre she had to have an ultra sound, they called to say they were ready for her to go down and have it done, but we couldn't leave, the ward had been put on lockdown. The fire alarm was set off and no one knew why. It turns out someone doing some work on the ward accidentally set it off. That was a bit of excitement to break the day up!
She has had a few blood and platelet transfusions also another ultra sound.
So it's just a waiting game...........

8 comments:

  1. I hopeyou feel better soon caitlin we are all missing you!

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  2. Thinking of you Caitlin - big hugs xox

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  3. hi caitlin, sounds like you are having a hard time, we are all thinking of you, it was nice to hear that you enjoyed the parcel. keep smiling love the locks

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  4. Just a note to let you know that I am thinking of you...and sending you lots of positive vibes!! Kia Kaha Caitlin! x

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  5. Here's a hug, thinking of you Caitlin.
    Lots of love always Emma xx

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  6. Sending zillions of healing vibes your way Caitlin, keep thinking positive and kick that BK virus to the curb! xo

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  7. I hope you start to feel better soon. Good thing you are the toughest, most amazing girl I know huh!

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  8. Kia Kaha Caitlin
    Im missing you so much
    School is not the same without you (really boring) I can't wait till you get back to school.
    Stay strong :) xoxo

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